AD, Data Partnerships – Rare Disease

This is a fully remote position, open to applicants in United States.

📋 Description

• Execute the organization's strategy for partnerships in rare disease data.

• Assess critical data requirements across US Commercial rare disease brands, functions, and key use cases.

• Develop, oversee, and enhance strategic collaborations with external data providers, platforms, and vendors.

• Utilize expertise in rare disease data sources, vendor capabilities, data limitations, patient identification challenges, and purpose-fit use cases to inform partnership choices.

• Ensure monitoring of data quality, security, privacy, and compliance standards for external data sources, platforms, and vendors.

• Work alongside data vendors, business stakeholders, analytics teams, field enablement, access, patient services, and cross-functional rare disease teams.

• Tackle data quality challenges and communicate necessary modifications.

• Manage adherence to data standards, data-sharing agreements, governance expectations, and internal policies.

• Enforce data stewardship practices across platforms, vendors, and technological solutions.

• Monitor data partnerships and associated expenses.

• Deliver performance metrics and governance reports to senior leadership.

• Identify opportunities for operational efficiencies, enhanced governance, and improved collaboration.

• Comprehend business needs, propose relevant data sets, and direct teams in deriving actionable insights.

• Offer ongoing data advisory support regarding recurring deliverables, data outputs, availability, limitations, and suitable usage.

⛳️ Requirements

• Bachelor's or Master's degree in Information Management, Computer Science, Business Administration, or a related field.

• At least 6 years of experience in establishing and managing data partnerships, particularly in rare disease, healthcare data, data governance, data management, or similar roles.

• Prior experience with or for a data vendor, data provider, healthcare data platform, or analytics organization is highly preferred.

• In-depth knowledge of rare disease data assets, including data sourcing, patient identification, data coverage, refresh cycles, linkage, quality considerations, and fit-for-purpose business applications.

• Comprehensive understanding of data partnership principles, frameworks, and best practices.

• Familiarity with regulatory requirements and industry standards related to healthcare data privacy, security, quality, compliance, and appropriate usage of rare disease data.

• Exceptional leadership, communication, stakeholder management, influencing, and change management skills within a complex organizational framework.

• Strong analytical and problem-solving capabilities.

• Experience with IQVIA, Komodo, MMIT, Symphony, Definitive Healthcare, Veeva, claims/EHR data providers, patient services data, specialty pharmacy data, or other similar healthcare and rare disease data sources is highly desirable.

• Capacity to translate rare disease business needs into data solutions and guide teams in selecting and utilizing the appropriate data sets for decision-making support.

• Ability to work remotely from anywhere in the U.S.

• Willingness to travel 20% domestically and/or internationally.

🏝️ Benefits

• Performance-related cash incentive.

• Eligibility for annual equity awards, based on the role level.

• Health benefits.

• Life benefits.

• Disability benefits.

• 401(k) plan with company contribution and matching.

• Vacation time.

• Personal days.

• Observance of holidays.

• Other types of leave.

• No relocation assistance provided.