Senior Manager – Patient Advocacy, Duchenne Muscular Dystrophy

This is a fully remote position, open to applicants in United States.

📋 Description

• Assist in the implementation of patient advocacy strategies for both enterprise and brand levels within a rare disease portfolio.

• Provide operational and project management assistance to the patient advocacy team.

• Work alongside the Director of Patient Advocacy and cross-functional partners to execute programs, initiatives, and resources that address the needs of patients and caregivers.

• Oversee patient advocacy partnerships, focusing on relationship building, sponsorship and grant management, and fulfillment of benefits.

• Act as the primary contact for patient organizations and advocacy leaders.

• Gather, analyze, and report on program metrics.

• Collaborate on the creation and distribution of compliant educational materials aimed at patients.

• Identify opportunities and events in patient advocacy; manage the events calendar and coordinate attendance across functions.

• Assist with budget management and vendor oversight.

• Create agendas for team meetings, document actionable items, and ensure follow-up.

• Manage the inventory and budget associated with advocacy materials.

• Participate in calls with external vendors and partners.

• Represent the organization at patient advocacy events and meetings, producing follow-up reports.

⛳️ Requirements

• Bachelor’s Degree.

• Over 5 years of experience in patient advocacy, corporate affairs, or a related area within the biotech/pharma sectors.

• Demonstrated ability to establish and maintain relationships with patient advocacy organizations and community stakeholders.

• A team player who is enthusiastic about collaborating closely with colleagues.

• Strong dedication to advocating for patient communities.

• Excellent project management skills, including the ability to prioritize, organize, and manage multiple projects effectively.

• Familiarity with the regulations governing patient engagement in the industry.

• Willingness to travel approximately 30–40%, including evenings, weekends, and multi-day trips.

• Capability to represent the organization at significant patient advocacy events.

🏝️ Benefits

• Health insurance.

• Dental insurance.

• Vision insurance.

• Generous paid time off.

• Retirement savings plan with Company Match.

• Competitive wages.