Senior Director, Patient Advocacy

This is a fully remote position, open to applicants in United States.

📋 Description

• Lead and build the patient advocacy and engagement function for the company, encompassing strategy, operational model, governance, and frameworks for external engagement.

• Develop and maintain relationships with patient advocacy organizations, professional societies, caregivers, patient leaders, and communities affected by rare diseases.

• Create processes to gather, analyze, and incorporate patient insights into research, clinical development, regulatory activities, communications, and planning for future commercialization.

• Design and implement initiatives for disease awareness, patient education, and community engagement.

• Ensure the patient perspective is integrated into decision-making processes across Centessa and its parent organization.

• Promote collaboration across departments including Medical Affairs, Clinical Development, Regulatory, Communications, Commercial, Market Access, and stakeholders from the parent company.

• Identify opportunities for advocacy, policy development, and market transformation.

• Develop metrics, KPIs, and reporting systems to evaluate the impact of advocacy efforts and the effectiveness of the organization.

• Oversee budgets, grants, and partnerships related to advocacy while ensuring adherence to industry standards and company policies.

⛳️ Requirements

• A bachelor's degree is required; an advanced degree is preferred (e.g., MPH, MHA, PharmD, PhD, or MD).

• A minimum of 10 years of experience in patient advocacy, patient engagement, or relevant roles within the biotechnology or pharmaceutical sectors.

• Proven track record in building, launching, or significantly enhancing patient advocacy capabilities, programs, or functions.

• Ability to influence executive leadership and foster alignment among cross-functional teams in dynamic and uncertain environments.

• Experience in developing patient education programs, disease awareness campaigns, and communications aimed at patients.

• Experience in establishing governance structures, operational frameworks, and performance metrics with quantifiable outcomes.

• Understanding of compliance requirements related to advocacy engagement, grants, and activities aimed at patients.

• Preferred experience in rare diseases, neurology, or CNS within pre-commercial organizations.

• Willingness to travel occasionally.

🏝️ Benefits

• Company bonus based on individual and overall company performance.

• Company-sponsored 401(k) plan.

• Pension plan.

• Vacation benefits.

• Medical, dental, vision, and prescription drug coverage.

• Flexible benefits, including healthcare and/or dependent care flexible spending accounts.

• Life insurance and death benefits.

• Various time-off and leave of absence benefits.

• Well-being programs, including an employee assistance program, fitness benefits, and opportunities for employee clubs and activities.