Director, Patient Services – Neuromuscular Disorders

This is a fully remote position, open to applicants in United States.

📋 Description

• Take ownership of the relationship and overall operational responsibility for ITF's patient support services and specialty pharmacy fulfillment.

• Drive the strategic design, optimization of business rules, and daily operational implementation of the ITF ARC (Access, Resources, and Care) program.

• Guarantee a seamless, high-touch experience for patients, caregivers, and providers navigating treatment with DUVYZAT™ (givinostat).

• Oversee the specialized in-home lab monitoring program.

• Act as the primary relationship manager and strategic liaison for the unique combined Hub/Specialty Pharmacy partner.

• Manage daily operations, vendor accountability, time-to-first-fill, conversion rates, and persistence metrics.

• Keep hub business rules, communication workflows, and SOPs updated and maintained.

• Enhance the ITF ARC program to remove commercial or government access barriers and reduce pipeline drop-offs.

• Direct the third-party in-home lab monitoring partner, ensuring compliant reporting to healthcare providers and ITF.

• Maintain data exchange and analytics pipelines with Hub/SP and ancillary vendors.

• Integrate patient funnel metrics, daily data feeds, operational KPIs, and adherence trends into actionable insights for leadership.

• Collaborate with the Field Reimbursement Manager, national accounts, Marketing, Sales, Patient Advocacy, Medical Affairs, and Legal teams.

• Supervise compliance, eligibility, and execution of co-pay assistance, QuickStart/bridge programs, and Patient Assistance Programs.

⛳️ Requirements

• Bachelor’s degree is required; an advanced degree is preferred.

• A minimum of 8–10 years of experience in the pharmaceutical, biotechnology, or life sciences sectors.

• Extensive, practical knowledge of specialty drug distribution, specialty pharmacy operations, and third-party patient service (Hub) frameworks.

• At least 3–5 years of proven success managing high-touch, lower-volume patient support models within the rare disease or orphan drug domain.

• Demonstrated success in managing external, third-party vendor relationships.

• Strong foundational understanding of HIPAA data privacy regulations and OIG guidelines concerning patient support services and interactions with patient communities.

🏝️ Benefits

• Comprehensive health insurance plans.

• Opportunities for professional development and career advancement.

• Flexible work arrangements and a supportive work environment.

• Generous paid time off and holiday policies.