AD, Patient & Community Liaison

This is a fully remote position, open to applicants in Kentucky, +2 more states.

📋 Description

• Provide precise and compassionate information regarding disease progression, symptoms, and unmet needs for patients and their caregivers.

• Equip patients and caregivers with the knowledge and resources necessary to navigate their journey with DMD or SMA.

• Inform patients and caregivers about the advantages, correct usage, and possible side effects of branded products utilizing authorized materials and guidelines.

• Build relationships with local advocacy chapter leaders.

• Participate in events nationwide, represent the Novartis table, engage with DMD or SMA families, answer inquiries, and deliver presentations.

• Address virtual inquiries from patients and caregivers via phone or email.

• Conduct virtual meetings with local patient advocacy leaders and communities.

• Provide insights to cross-functional teams to aid in the development of educational materials, presentations, resources, and market strategies.

• Identify knowledge gaps among patients and caregivers and suggest enhancements to educational content.

• Comply with regulatory and compliance standards, including training and reporting on Adverse Events.

• Record interactions and feedback to refine the education program and support outcome tracking.

• Participate in internal and business reviews and prepare relevant meeting materials.

• Engage in functional planning, including tactical plans and budget considerations.

• Maintain a working knowledge of Concur, Salesforce, FUSE, and related platforms and processes.

• Stay updated on scientific knowledge related to responsible products and therapeutic areas.

• Ensure adherence to Novartis policies, the Code of Conduct, laws, and regulations.

⛳️ Requirements

• Bachelor’s degree in healthcare (e.g., social work, genetic counseling), education, or a related field.

• A minimum of 5 years of experience in patient education, pharmaceutical, or healthcare support roles.

• Willingness to travel 70% of the time, including weekends.

• Must reside near a major airport.

• Bilingual in Spanish and English.

• Outstanding communication and interpersonal abilities.

• Capability to present complex information in an empathetic, clear, and engaging way.

• Experience delivering presentations to live audiences.

• Familiarity with regulatory and compliance guidelines within the healthcare or pharmaceutical sectors.

• Proficient in utilizing virtual education tools, such as video conferencing and webinars.

• Creative and conceptual thinking skills.

• Ability to lead, motivate, develop, and influence others.

• Strong teamwork and collaborative skills with a positive mindset.

• Proven effectiveness in a matrixed environment.

• Experience with financial and budgetary processes.

• Background in neuroscience/neuromuscular therapies, gene therapy, and rare diseases is preferred.

🏝️ Benefits

• Performance-based cash incentive.

• Eligibility for annual equity awards, depending on the role level.

• Comprehensive health benefits.

• Life insurance benefits.

• Disability insurance benefits.

• 401(k) plan with company contributions and matching.

• Paid vacation.

• Personal days off.

• Paid holidays.

• Additional leave options.