Patient Engagement Liaison – Midwest

This is a fully remote position, open to applicants in Illinois, +2 more states.

📋 Description

• Engage with the rare disease community, including patient advocacy organizations, to gain insights into the rare experience and integrate these perspectives throughout PTC.

• Collaborate with internal PTC teams to identify, educate, cultivate, and utilize relationships with individuals living with rare diseases, their caregivers, and Patient Advocacy Organizations.

• Assist communities in accessing resources to eliminate barriers and secure coverage for marketed products, when appropriate.

• Establish patient advocacy and community connections for marketed product disease states and products in development, in compliance with applicable regulations.

• Work cross-functionally with medical, communications, commercial, legal, and compliance teams to ensure adherence to guidelines, standards, and regulations.

• Connect families with Patient Advocacy Organizations and available resources.

• Develop, plan, and implement educational programs for individuals living with rare diseases and their caregivers.

• Support Patient Advocacy Organizations through shared interests in education and programs.

• Collaborate with the rare disease community to advocate for access to care and therapies.

• This is a field-based role primarily supporting the Phenylketonuria (PKU) community and potentially other therapeutic-area communities.

• Travel up to 75% domestically, including overnight stays, weekends, and evenings as needed; potential for international travel.

⛳️ Requirements

• Bachelor’s degree.

• 5 years of experience in the pharmaceutical, biotechnology, advocacy, medical, or related field.

• Experience supporting individuals with rare diseases, their caregivers, and advocacy organizations.

• In-depth understanding of healthcare, specialty pharmacy, pharma, and biotech industries.

• Adherence to all compliance regulations and confidentiality standards.

• Proven leadership experience as part of cross-functional teams.

• Track record of building and maintaining robust relationships, both internally and externally.

• Proficiency in Microsoft Office suite and Zoom.

• Exceptional verbal and written communication and presentation skills, including the ability to convey technical information to non-technical audiences.

• Capacity to work independently and collaboratively in a dynamic, matrixed team environment.

• Strong analytical and critical thinking abilities; adaptable to changing priorities and deadlines.

• Competence in planning, organizing, and time management.

• Ability to quickly, confidentially, and accurately enter data into CRM systems.

• Valid driver’s license and a clean driving record.

• Willingness to travel extensively within the assigned territory, country, and potentially internationally.

• A degree in a relevant clinical or scientific discipline, such as nursing, public health, social work, nutrition, or dietetics, is preferred.

🏝️ Benefits

• Short- and long-term incentives.

• Medical plan.

• Dental plan.

• Vision plan.

• Retirement savings plan.