Patient Engagement Liaison – Mid-Atlantic/Ohio Valley

This is a fully remote position, open to applicants in New York, +3 more states.

📋 Description

• Engage with the rare disease community, including patient advocacy organizations, to gain insights into the rare experience and integrate these learnings throughout PTC.

• Collaborate with internal PTC teams to identify, educate, and foster relationships with individuals living with rare diseases, their caregivers, and Patient Advocacy Organizations.

• Provide communities with resources aimed at alleviating access barriers and securing coverage for marketed products when appropriate.

• Establish and nurture patient advocacy and community relationships related to marketed product disease states and products under development, in compliance with applicable regulations.

• Work across departments with medical, communications, commercial, legal, and compliance teams to adhere to country-specific guidelines, standards, and regulations.

• Connect families to Patient Advocacy Organizations and other resources.

• Develop, plan, and implement educational programs for individuals living with rare diseases and their caregivers.

• Support Patient Advocacy Organizations through shared goals in education and programming.

• Collaborate with the rare disease community to advocate for access to care and therapies.

⛳️ Requirements

• Bachelor’s degree.

• 5 years of experience in the pharmaceutical, biotechnology, advocacy, medical, or a related field.

• Experience in supporting individuals with rare diseases, their caregivers, and advocacy organizations.

• An empathetic and compassionate individual who can relate to the challenges faced by rare families.

• Understanding of the healthcare, specialty pharmacy, pharmaceutical, and biotechnology sectors.

• Adherence to all compliance standards and confidentiality protocols.

• Proven leadership experience working within cross-functional teams.

• A track record of establishing and maintaining strong relationships both internally and externally.

• Proficient in Microsoft Office suite and Zoom.

• Excellent verbal and written communication skills, including the ability to convey technical information to non-technical audiences.

• Ability to function independently as well as collaboratively in a dynamic, fast-paced team environment with both internal and external members.

• An analytical thinker with strong critical thinking abilities and adaptability to shifting priorities and deadlines.

• Exceptional planning, organizational, and time management skills.

• Capacity to input data quickly, confidentially, and accurately into CRM systems.

• Valid driver’s license and a clean driving record.

• Willingness to travel domestically up to 75%, including overnight stays, weekends, and evening commitments as needed; potential for international travel as required.

🏝️ Benefits

• Short- and long-term incentives.

• Medical plan.

• Dental plan.

• Vision plan.

• Retirement savings plan.