Director of Communications and Marketing

This is a fully remote position, open to applicants in Massachusetts.

📋 Description

• Lead the communications function at ARC in collaboration with the CEO and departmental leaders.

• Take ownership of the annual marketing and communications plan that aligns with ARC’s strategic objectives.

• Oversee shared content calendars, manage ownership, timelines, prioritization, and cross-departmental planning.

• Establish priorities and suggest resource trade-offs.

• Enhance the reach, impact, infrastructure, and capabilities of communications.

• Develop and implement integrated, multi-channel fundraising campaigns alongside the development team.

• Create donor stewardship communications, impact reports, annual reports, and materials for major gifts.

• Direct story-based fundraising communications.

• Steer ARC’s brand strategy and architecture.

• Strategize messaging for major initiatives, programs, partnerships, and organizational changes.

• Lead a comprehensive redesign of the website in collaboration with an external contractor during the first year.

• Manage ongoing website content, its performance, and improvement efforts.

• Produce storytelling that highlights patient, caregiver, and clinician perspectives.

• Convert scientific and clinical findings into content that is accessible to general audiences.

• Oversee email communications, newsletters, automated segmentation, and list management.

• Develop and carry out social media strategies across various platforms.

• Supervise the monthly blog editorial schedule, including authors, editing, and scientific advisor reviews.

• Provide support to programs with communications materials and templates.

• Manage communications for signature events, educational programs, and collaborative initiatives.

• Keep track of developments in the field and produce rapid-response content as needed.

• Maintain communications dashboards and provide monthly updates along with quarterly reports.

• Assess campaign performance and adjust communications strategies based on outcomes.

• Manage external vendors, contractors, and oversee the communications budget.

• Evaluate and integrate emerging tools, including AI, while ensuring quality and human oversight.

⛳️ Requirements

• Over 7 years of progressively responsible experience in nonprofit communications, marketing, or external relations.

• Direct experience in supporting fundraising and donor communications.

• Experience providing counsel to senior leaders.

• Background in developing thought leadership, media relations, or external communications strategies.

• Proven track record in planning and executing integrated, multi-channel email, social media, web, and print campaigns.

• Demonstrated success in increasing engagement and/or revenue.

• Outstanding writing and editing capabilities.

• Ability to clearly convey complex or scientific information to lay audiences.

• Experience in evaluating and adopting emerging communication technologies, including AI-enabled tools.

• Strong project management skills and executive function.

• Capacity to prioritize among multiple projects and structure cross-functional work.

• Hands-on experience in execution.

• Experience in selecting and managing external vendors.

• Familiarity with larger-scale website redesigns or other significant digital projects.

• Ability to define key performance indicators (KPIs), create dashboards, and use data to inform decisions.

• Preferred: experience in rare disease, patient advocacy, health, or scientific/medical nonprofit organizations.

• Preferred: experience with CRM and email platforms; familiarity with Salesforce is advantageous.

• Preferred: experience with social media tools and design software such as Canva and Adobe Creative Suite.

• Preferred: experience with brand strategy or architecture.

• Preferred: experience in a small, entrepreneurial nonprofit or fast-paced, lean organization.

• Availability to work Monday to Friday, from 9:00 AM to 5:00 PM Eastern Time.

• Submission of a resume and cover letter is required; applications without a cover letter will be deemed incomplete.

🏝️ Benefits

• Four weeks of vacation time.

• Eight days of sick leave.

• Ten holidays.

• Two floating holidays.

• PTO-Free Days during the extended holiday break from Christmas to New Year’s Day.

• Comprehensive contributory medical, dental, and vision insurance plans.

• ARC covers 65% of individual and family medical and dental insurance premiums.

• 100% employer-paid Life and AD&D coverage.

• Short-Term and Long-Term Disability insurance.

• Health and Dependent Care Flexible Spending Accounts (FSA).

• 401(k) retirement plan with up to a 4% employer match.

• Employee Assistance Program (EAP).

• Workers’ Compensation.

• Fully remote work arrangement.