
Senior Director, Research
Posted Aug 7

Posted Aug 7
This is a fully remote position, open to applicants in District of Columbia, +1 more state.
• Oversee the expanding research program aimed at creating effective treatments for ALS and enhancing the quality of life for those impacted by the disease.
• Develop, solicit, evaluate, and manage a portfolio of ALS research that aligns with scientific and strategic objectives.
• Create and implement new initiatives for research funding.
• Manage and supervise external research funding programs.
• Spearhead national collaborative efforts on ALS, such as the AMP ALS initiative.
• Engage in global initiatives established by The International Alliance of ALS/MND and other international entities.
• Lead and collaborate with the board of trustees' research committee regarding strategy, program and project approvals, portfolio assessments, and impact reporting.
• Present research advancements to various audiences including scientific, clinical, policy, and donor stakeholders.
• Stay updated on ALS research, including studies affecting caregivers and individuals at risk of developing ALS.
• Cultivate relationships with ALS research leaders and organizations.
• Attend scientific conferences and engage with awardees, collaborators, and prospective donors.
• Plan and conduct scientific workshops as necessary.
• Establish connections with biotechnology and pharmaceutical companies to further ALS research and drug development.
• Promote grant applications and facilitate partnerships among scientists.
• Supervise 1–2 employees within the research department, which includes hiring, coaching, performance management, and professional growth.
• Report directly to the Executive Vice President and Chief Scientist while collaborating with mission, development, marketing, and finance teams.
• Travel to Association offices, territories, conferences, and other events as required by business needs.
• A graduate (PhD) degree in Neuroscience, Pharmacology, Molecular Biology, Biochemistry, Clinical Sciences, or a related medical or health profession discipline.
• Minimum of 5 years of demonstrated experience with an organization dedicated to scientific and medical progress.
• Prior experience as a research funder or portfolio manager is highly preferred.
• Ability to work both independently and collaboratively with internal and external teams.
• Demonstrated public speaking and writing skills for diverse stakeholders, including individuals with serious illnesses and partners from government, academia, and industry.
• Proven ability to exercise sound judgment and analytical decision-making.
• Familiarity with ALS, neuroscience, or neurodegenerative diseases is preferred.
• Strong computer skills, particularly with Microsoft Office.
• Experience or proficiency with accounting software, contract management systems, development software, human resources systems, inventory software, payroll systems, and project management software.
• Willingness to travel up to 30% of the time for business purposes.
• Capability to supervise, hire, coach, manage performance, and support the professional development of 1–2 employees.
• Candidates must meet applicable U.S. employment eligibility requirements.
• Healthcare benefits.
• 401(k) plan with employer matching.
• Short-term disability coverage.
• Long-term disability coverage.
• Basic life insurance.
• Well-being benefits.
• Paid time off.
• Several paid holidays.
• Potential for merit-based salary increases based on individual performance.
• Option for remote work for candidates residing in major metropolitan areas.
• Commitment to equal opportunity employment.
• Accessibility assistance available throughout the application process.
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