Senior Community Engagement Manager, Sickle Cell

This is a fully remote position, open to applicants in United States.

📋 Description

• Initiate and Direct the SCD Community

• Act as the main community manager for our new sickle cell disease community — establishing a visible, credible, and trusted presence from the outset

• Establish an atmosphere for authentic, safe, and culturally aware participation during the crucial initial months of launch

• Influence discussion topics, norms, and member experiences that accurately represent the real and intricate realities of living with SCD

• Encourage Meaningful Engagement

• Greet new members and help foster an environment where individuals feel at ease participating and sharing

• Support ambassadors and highly involved members who assist in enhancing trust, connection, and belonging within the community

• Generate thoughtful prompts, polls, Q&As, educational discussions, and storytelling opportunities that promote genuine conversation and practical peer support — addressing SCD-specific topics like ER navigation, gene therapy access, fatigue, disability benefits, and more.

• Nurture Safe and Supportive Community Experiences

• Oversee conversations to ensure a safe, respectful, and inclusive atmosphere

• Address misinformation — including unproven treatments — with nuance and education rather than censorship, while upholding evidence-based standards

• Assist members in finding reliable, evidence-informed resources while valuing the significance of lived experience and peer connections

• Advocate for Members

• Highlight member insights, recurring challenges, and emerging themes to the Product, Editorial, Marketing, and Research teams

• Aid internal partners in gaining a better understanding of the emotional and practical realities members encounter beyond clinical symptoms

• Offer suggestions that enhance how the Community, Email, Product, and Content experiences collaborate to better support members

• Promote Community Growth and Health

• Oversee a wider array of health communities in addition to your primary SCD focus

• Examine engagement patterns and community trends to refine strategies and enhance member connections

• Thoughtfully experiment with new engagement methods while remaining grounded in member needs and community safety

⛳️ Requirements

• Over 3 years of experience in building and managing online communities, patient communities, peer support spaces, or highly relationship-driven digital experiences

• Excellent written and verbal communication skills with the capability to create thoughtful, supportive, member-centered experiences

• A quick, empathetic, and considerate approach to member interactions

• Strong emotional intelligence and the ability to handle sensitive conversations with care and professionalism

• Proven experience in building trust with diverse communities and promoting inclusive participation

• Comfort in collaborating across functions with Product, Content, Analytics, Marketing, and Community teams

🏝️ Benefits

• Recognition as one of the Best Places to Work by Business Intelligence Group in 2025 and 2026