Associate Director, US Patient Advocacy

This is a fully remote position, open to applicants in United States.

📋 Description

• Develop and implement strategies and engagement plans for patient advocacy across various disease therapeutic areas in alignment with corporate goals.

• Balance and prioritize both pipeline and in-market indications, including gMG and CIDP.

• Execute patient advocacy engagement strategies at both national and local levels in collaboration with cross-functional teams.

• Translate US and market strategies into practical tactics and events.

• Establish and manage relationships with US Patient Advocacy Organizations.

• Gain insights into patient needs through events, panels, and other engagement opportunities.

• Provide localized support to the patient services team during the onboarding process for patients.

• Represent argenx at external events and conferences to educate and engage with patients.

• Define and assess the business impact at local, regional, and national events.

• Maintain a thorough understanding of disease states, Patient Experience, and product knowledge.

• Generate and synthesize insights to guide local market engagement.

• Collaborate across functions to identify patient advocacy needs and opportunities.

• Advocate for the patient community within argenx and the Advocacy team.

• Manage compliant events, sponsorships with patient advocacy organizations, and budgetary considerations.

• Oversee the Advocacy strategy for assigned indications from development to market launch in partnership with TA-level Advocacy colleagues.

• Ensure alignment and prioritization of activities through established frameworks, standardization, and effective ways of working.

• Travel meaningfully within designated geographies and attend prioritized patient events, whether in-person or virtually.

⛳️ Requirements

• A Bachelor’s Degree is required.

• A minimum of 10 years of experience in the industry or a related field.

• Demonstrated ability and success in implementing innovative programs within rare diseases and among minority and underserved patient populations.

• A proven track record of establishing and adhering to an Advocacy strategy for a specific indication or Therapeutic Area.

• Proficiency in Veeva is required.

• Experience with patient interactions in the rare disease sector and compliance is mandatory.

• Willingness to travel up to 50% of the time is essential.

• Availability to attend events outside of standard business hours, including weekends and evenings.

• An advanced degree is preferred.

🏝️ Benefits

• Short-term and long-term incentive programs, in accordance with applicable plans and policies.

• A comprehensive benefits package.

• Retirement savings plans.

• Health benefits.

• Additional benefits as per applicable plan and program guidelines.

• Flexible schedule to accommodate work during evenings and weekends.

• An inclusive environment that ensures equal consideration without discrimination.

• Reasonable accommodations available during the application process, interviews, or candidate selection activities.