Patient Advocacy Manager

This is a fully remote position, open to applicants in Connecticut, +8 more states.

📋 Description

• Act as the main point of contact for patients and, when relevant, caregivers, healthcare providers, and advocacy organizations.

• Gain a comprehensive understanding of each disease area and patient journey to facilitate patient engagement, ensure their perspectives are accurately reflected, and acknowledge condition-specific daily needs and quality-of-life factors that may influence how patients manage care and daily activities.

• Evaluate patient strengths, narratives, and readiness; align them with suitable client/program requirements.

• Assist patients in meeting contractual obligations and preparing for engagements.

• Organize and enhance presentation skills coaching and training to ensure patient representatives feel confident and effective.

• Oversee performance and engagement quality, addressing concerns promptly and professionally.

• Collaborate closely with Client Strategic Services to synchronize patient representative activities with client goals and brand initiatives.

• Liaise with client (pharmaceutical company) representatives about patient engagement necessities, expectations, and onsite coordination.

• Aid in the execution of client-facing events (e.g., educational programs, internal meetings, photo/video shoots) and represent the program professionally on-site.

• Convert patient insights into actionable recommendations that enhance client strategies and solutions.

• Proactively identify enhancements to better fulfill client needs and improve service delivery.

• Manage the complete lifecycle of patient community engagements and related projects (from needs assessment to execution and closure).

• Responsible for directing the Meetings Logistics team to plan and implement logistics for projects, including scheduling, travel coordination, and compliance with travel guidelines.

• Coordinate with internal teams to meet timelines and requirements.

• Assist with the annual patient training summit or other ongoing training initiatives.

• Facilitate the expense process and ensure smooth operational follow-through.

• Contribute to process optimization and update SOPs to reflect changes in policies, procedures, and brand initiatives.

• Complete and adhere to mandatory compliance trainings (e.g., HIPAA/Privacy & Security, Sunshine Act, Adverse Event reporting, FDA/FTC promotional requirements, internal policies).

• Handle PHI/PII appropriately; maintain contracts, health records, and personal data according to HIPAA and relevant privacy standards.

• Ensure Adverse Events are recognized, escalated, and reported according to client specifications and internal processes.

• Keep contracts up-to-date and monitor expirations to avoid lapses in eligibility/engagement.

• Ensure financial and expense activities comply with internal policies and client requirements.

⛳️ Requirements

• Bachelor’s degree from an accredited institution.

• At least 5 years of experience in a life sciences agency, patient advocacy, patient engagement or patient communication consulting firm, or advocacy organization working directly with patients.

• Experience with pharmaceutical or biotechnology companies is advantageous.

• Experience working directly with patient advocacy groups, patients, and caregivers; must possess an empathetic tone and demeanor.

• Strong attention to detail and capacity to manage coordination responsibilities across various project requirements/project functions.

• Comfort and confidence in the regular use, application, and potential of AI.

• Familiarity with FDA and HIPAA guidelines as well as health literacy principles.

• Willingness to travel: 35-40%.

🏝️ Benefits

• Competitive salary plus bonus scheme

• Medical, dental, and vision insurance options

• 401(k) plan with employer match

• Flexible paid time off program + 10 paid holidays

• Flexible spending accounts for health and dependent care

• Health savings account option with employer contribution

• Employee Assistance Program

• Paid short-term and long-term disability coverage

• Company-paid life insurance coverage at 1.5x annual salary

• Paid parental leave and more